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Guard Your Heart

Perhaps burnout has been a companion of yours for sometime now. You've actually gotten used to it and adjusted your life according to your limited reserves. You've surrendered to the burn so to speak. You no longer beat yourself up for not having enough energy for everyday tasks. You stopped saying yes to requests and activities because you knew that you would end up cancelling or being a no show anyways. Your friend group and support system has shrunk because in their efforts to be supportive of you they began to feel helpless and their efforts futile. You started your caregiving journey with zeal and conviction and purpose and passion but all that is gone now and you are alone, tired, and resigned to the idea that this is how its always going to be. I frequently talk with people who find themselves in this place. I try and offer hope and encouragement and care and support but it often seems to evaporate into thin air. Its almost as if the person in this situation doesn't

When Children are Impacted by Grief and Loss

Well meaning parents and caregivers often try to shield children from the experience of grief and loss and for good reason. Grief and loss are acutely painful experiences. However, regardless of our best efforts to shield these innocent hearts, children are intuitive and whether they can verbalize it or not they sense when something isn't right. Rather than leave their little minds to try and make sense of what's going on around them, I argue that parents and caregivers should invite children into the experience of loss and grief so that they can encounter it with a caring adult and guide at their side.  Here are a few ways I encourage parents and caregivers to approach children about issues related to grief and loss: 1- Be open and honest and keep in mind that honesty does not mean revealing every minute detail and aspect of the situation. Simply paint an overall picture of the situation and allow the child the freedom to ask question and seek more information on their own. Le

A Witness of Loss

One of my greatest privileges I’ve experienced in my professional work has been and is to be a witness to another person’s life as they near the end of their physical life. In the past 10 years of working in hospice , I’ve had many memorable patients and moving experiences. Just in the past few weeks, I have had some moments that, as they were occurring, I knew were significant. A few weeks ago, I stopped by a patient’s home to drop off a copy of her DNR form to her husband. This patient was diagnosed with Alzheimer’s Disease a few years ago and had experienced a steady decline over the past few months leading her to be eligible for hospice. I wasn’t planning to go into the home and visit with the patient and her spouse since I had already made a formal visit the week earlier and I wasn’t aware of any new issues or needs but the husband invited me in and to be polite I accepted the invitation. As soon as the door behind me closed, I heard the all too familiar sound of congested breathi

Am I Experiencing Burnout?

Whether you find yourself caring for your precious newborn, multiple kiddos, a spouse who has been injured or is sick, or aging parents, you are likely to experience some level of burnout during your time in this caregiving role. You might've even taken on this role already in a state of burnout from the basic demands of everyday life. While some people might view burnout as a preventable state resulting from not caring for yourself adequately or not having healthy enough boundaries, I would argue that burnout is a natural and normal part of being human. I believe that being a person who cares for and cares about other people is inherently good and exhausting and there is no way to avoid caregiving burnout unless you choose to stop caring altogether, and I'm guessing that's not an option for you.  So, how do we handle burnout when it comes? How can we lessen the impact of burnout? How do I know that what I'm experiencing is burnout and not something else? First, let'

Family Caregivers

Family caregivers are unsung heroes that make up a delicately crafted, largely invisible safety net of our society. They are among the most hidden and unappreciated workers caring for the incredibly vulnerable members in our communities, the disabled, the sick, and the aging. I’m so grateful for the research and data recently published by The National Alliance for Caregiving and AARP who teamed up to investigate the world of caregivers. The results of this study shed light on how grossly overburdened and pressed family caregivers are in terms of the amount of care needed by the care recipient, lack of adequate resources and reliable caregiving support services, and the consequential toll the stress is taking on the caregiver’s overall health. The researchers conducted an online survey with 1,392 caregivers who were taking care of another person (either family or friend) who was 18 years old or older. In this study a caregiver was someone who was providing unpaid care to another adult i

How Pain Can Actually Save Us

I recall being in middle school and watching a popular talk show one afternoon, I can't remember if it was Jerry Springer, Rickie Lake, or Oprah, but it was during that time frame. The show topic caught my attention when I was supposed to be doing homework. They were interviewing a young girl (around my age or younger at the time) who had a condition in which she felt no pain. Ever. Nothing. Not even the slightest sensation of physical discomfort. I was immediately jealous and curious to learn more about this condition. Over the course of the interview my jealousy transformed into a deep sense of gratitude for the fact that my body was able to experience pain. This young girl who couldn’t feel pain had a rare genetic condition known as congenital insensitivity. She was interviewed alongside her mother and the two shared how incredibly devastating this condition was to the girl's health and to the entire family's well-being. One example they gave was a scenario of the girl p